Len Crispino shared his patient story about living with multiple heart conditions, kidney failure and cancer in a video to open the November 2024 Unite Summit.

The report Heart Valve Disease: Working together to create a better patient journey commissioned by Heart Valve Voice Canada and written by The Health Policy Partnership provides a comprehensive view of the entire heart valve disease patient journey from first detection to diagnosis, follow-up, and treatment, identifying gaps and their impacts. This report was developed under the guidance of a multidisciplinary advisory council, whose members included people with lived experience and healthcare professionals engaged in heart valve disease in Canada. The patient perspective was the common thread throughout this report.

This global roadmap, to which Heart Valve Voice Canada is a contributor, is designed to support patient organizations and advocates who wish to implement shared decision-making for people facing heart valve disease treatment options.